About Me
Let's Get To Know Each Other!
My name is Bryn Lambert, and my son has a rare disease.
Those words used to be so hard to say. Telling our story was an emotionally draining experience. But the more I told it, the more I realized how therapeutic it was to share our experiences with others.
My intention in creating this site is to find a way to cope with my thoughts and feelings about my son's diagnosis and also, support and inspire others in their journey with rare disease. By sharing our stories, we can positively impact the lives around us and help others find joy in the remarkable children we love.